This blog is more often than not dominated by the stories of so many of the beautiful children and families that I have had the privilege of crossing paths with, all as a result of just a little extra genetic material. It is amazing really that this whole family of others I didn’t even know existed until a diagnosis brought us all together. Time to time though I try to remember to pop in and share a bit about Cedar since not all of the blog readers follow us on Instagram or Facebook where I share daily pictures and antics of this sweet guy.
As for Cedar, he is doing so well in many areas, and taking his sweet time in others. In the past month we have increased our physical therapy to in-home appointments weekly. I love our therapist whose high voltage and super charged personality leave my little guy in awe most times. She is innovative and encouraging and really pushes Cedar to work towards some of the goals we have set for him.
What goals you ask? Sitting independently is our biggest goal at this point. I know it will come (because seriously have you ever seen a child with Down Syndrome that wasn’t able to sit independently? Me either) but Cedar is taking his sweet time about it because he is so busy smiling at his siblings and I, as well as the camera. This kid can seriously tell when I pull the camera out because he starts cheesing it up, I joke with him that his fans are waiting for more pictures so he has to smile, and he never leaves me hanging.
Cedar is eating well and likes just about everything I feed him, even the prunes that accompany most meals to ensure his regularity (our kiddos sometimes have trouble in this department). I make his baby food and have been playing with texture but he isn’t overly fond of too many chunks.
We recently had a check up with the cardiologist and at this point Cedar’s two holes (he has an ASD and PDA) are still present and require us to see cardiology every 6 months.
The area that Cedar is advancing in his speech and social interaction. He can say MaMa and knows who he is talking about and he said DaDa for the first time just today (Daddy was pretty excited). He makes other vowel and consonant babbles as well as noises we call his dinosaur noises as they crack us all up.
I have noticed that Cedar has an acutely keen emotional sense as he can pick up on happy and sad faces and immediately his face will mirror what he is seeing, if his brother is crying he is the first to look genuinely concerned.
So new things this month…
Cedar tried a slide for the first time (on his brother’s lap of course- he wasn’t a fan)
Cedar tried a floatie in our pool (he loved it)
Cedar got his 4th haircut since birth (yes you read that right- and his Instagram followers nearly threw a fit)
Cedar is trying to scoot (but face plants often)
Cedar really likes Bananas and Mangos (especially from a straw when its mom’s smoothie)
Cedar left the state of Ohio for the first time when we traveled for a funeral
Cedar joined other children in our area for a photo shoot and he will be featured in a calendar this year
Cedar loves to dance and hear music.
Life is better with you in it.